Monday, November 16, 2009

what motivates you in the morning?

So what gets your day going? What does it take to get your day going? Anything to give you some type of energy to get going. For me, it is really hard to get up and usually in the early mornigs-I'm NOT a morning peson. However, Tim takes alot out of me no matter what time of the day it is.

So since I was to lazy to get up this weekend to clean house, I found myself doing it this morning. Yes. I was up bright and early before the sun was up. That is not like me at all. But Tim was up all night playing his computer games and didn't hit the sack until around 5:30am. so I went to lie down a little longer and of course slept a little longer until the phone rang. It was Tim's home health aid. So I jumped out of bed, turned on my stereo and started to clean quickly, dumping trash and all.

For me, I have to have my music on...& loud. I need some type of motivation to get going. So there it was...the ABBA album...then my old 70's favorites with the BeeGee's, James Taylor and so on. I, of course, don't see anything wrong to dance because it is a great exercise and I for one need to look another 40 lbs. I've lost 30 already but I can loose more. (Although my therapist doesn't think I'm going about it right but hey I have to loose it somehow).

So what motivates you to get things done? Other than a nice cup of hot coffee? I can use a cup right now. " ..the things we do for love..." sorry...the song is on...."now walking in the rain and...you think you got a break up and she wants to make up...the things we do for love..."

well...I need to lie down a few more minutes.

First...I need my applesauce and granola for breakfast.

Thursday, November 12, 2009

Homecoming 2010- Its YOUR wings...soar the unlimits!

So...if you were hosting your High School/Academy Homecoming....what would you "entertain" with? What activities would you provide?

Remember you are dealing with some folks who are "strict religious" folks, while you are dealing with others who are not or even near it. You want to compromise. You know you can't make everyone happy and at the same time you don't want to discourage people to come either.

You want it to be an event where classmates can come together and enjoy themselves ...socialize, rebuild friendships, reconnect with classmates and see Alumni (graduates) reunite again. You want to see alot of smiles all weekend long.

You want to leave a cheerful reputation....yeah you might get some complaints (what's new?)...something you will pick up to make sure you don't make the same mistake again (if there were any). Some people may not be happy with all the activities while others may cheer it on. Remember, you can't please everyone. There will be people on boths sides who will look down at you while there will be folks padding you on the back. But you will take whatever you can from both side.

You want everyone to really enjoy themselves...something they will talk about for a long time-ALL OF THEM.

I had thought I might had a former "classmate"/friend who has a fabulous voice and plays the guitar well do a mini concert at our benefit dinner. I think I almost got him until I think someone else sabotashed it earlier. Now he is sort of afraid to do it. I told him...to give it a try. Have some fun with it. Think about it. I think I lost him. He really can sing and play. I'm disappointed he may not come. I hope (and pray) he will change his mind.

I asked a few classmates to get together and put together a fun entertaining night for us. I put it in their hands. I hope they will take up the challenge cuz I trust they will do alot of good and have lots of fun. They all play the piano, they can really sing and they know how to have loads of fun. I know a few other classmates who also can do the same. I'm hoping they will join these lovely ladies.

but just in case everyone backs out on me and I'm left alone to do everything again (back at work with no pay and lot of pain)...I was thinking of doing a Karoke Challenge (contest) . Saturday night is about everyone having loads of fun together...and yet something kosher. I would like to see some comedy too. I think that will be perfect. So how do you satisfy everyone...or do you ...or can you?

I like people. I like to socialize. But I also like doing things with my friends too...not just sitting there gabbing. We have all weekend to do this. But for one night, we can be let loose and really enjoy ourselves. Have fun!! Laugh. There is NOTHING wrong having fun, laughing and enjoying yourselves. God does NOT forbid this. He does NOT condone it. I believe God has alot of sense of humor. I believe He has given all of us different talents and gifts with our voices.

SO I challenge my classmates...how about it? Tell me what would you like to see happen at Homecoming 2010? Share with me. It's YOUR night! What would you like to see happen? Its ok to voice it...to share it...to suggest it.

Its going to be an eventful weekend...just for YOU!! Let your wings fly...soar to unlimited boundaries. Its you gift....your talent. Share it!

Tuesday, November 10, 2009

Stop putting things on hold...& JUST DO IT!!!

Have you ever put something on hold for various excuses or reasons and wondered why you just didn't do something about it?

IF you are new to the PPMD community, or even if you are not new to the community, you might noticed the set of photos that we as parents share of our boys. Look at all those faces. They are smiling. They are innocent. These are the faces of our boys who has their mom and dads and grandparents, uncles and aunts, siblings and cousins that fight to end Duchene. They fight for their lives, because of a disease that robs them the ability to do tihngs for themselves.

While many stay strong, live longer than expected, many are taken far to soon. Every day, as parents, we struggle to give back to a community. We work hard to raise the funds. We work hard to advocate with the higher beings. We beg God for mercy. Yet, this one disease doesn't get it and keeps robbing these innocent faces.

Every day, when I awake or hear Tim call me for help, I'm thankful he is still calling out my name. But his poor 20 year body is slowly slipping away from him...from me. I often lay on my bed weeping -begging God for mercy for this boy's life. God gave him to me for a reason. I'm still trying to figure that out. But why would God give me a boy that he knew he would take away eventually? What lessons are we as parents of children with such a diseasee are we suppose to learn? What is it that God is asking us to listen to? What is our purpose in life? To be the chosen parent to care for this lovely face. Why give and then take away so young?We often don't know the answers to all the questions.

I do know that I must have my son prepared for those pearly gates. I do know by being with him everyday is teaching me patience and to love and care for those around me. Is God testing my faith in Him. Is God testing Tim's faith in Him? Is God testing YOUR faith in Him?

Like me, are there times you are just angry at Him? I know I am. But there is a purpose for everything in our lives. Sometimes we are just to blind to see it or deaf to hear Him. I mean, there is no way of all of us knowing that somehow in our prior years that God was someway or somehow preparing us for this gift?

I am sad and mad becasue this disease, like cancer, eats away the innocence.

When you look at your children's faces, what do you see? While you are sitting down right now reading this, pull out paper and pencils and write it down. What do you see in your child? Look into his eyes if you can and write it down in your heart and take a snapshot of that and save it. Grasp it and hold on to it. It seems this disease puts our lives on hold too. It not only robs the boys of their livilihood, it seems to also rob some of the things that we are use to doing. Its like everything is put on hold. WELL...I'm NOT going to let it put my life on hold or his. Why? so it can win?

Recently while trying to put together an special event that I know I am good at, I was told to put it on hold for now. The explanation was reasonable and made sense. However, I can't tell my only child to hold on until next year. There are NO guarantees for tomarrow for any of us. I need to do something somehow to help save my son's life and I need to do something that I am good at. Everything else I tried just didn't work. Sad as it may be. So why do I to put something on hold when my son's life might depend on it. YOUR son's life might depend on it as much as any fundraising event that any other parent initializes or participates in.

What would you do? Hold off? Or challenge it ? It's YOUR son...that innocent life...that beautiful smiling face that looks at you. Would it make a difference? Can it make a difference. Don't you think you have put enough on hold for now?

The faces of our boys and girls with a disease that robs from them are part of our world now....what is there to put on hold when yet a cure to come will not save them "tomarrow." Are we going to put hope on hold? My son deserves more than that. YOUR son (or daughter) deserves more than that.

Think of Josh...Kevin, sadly maybe even Cody, and the many many many more out that whose lives were put on hold due to a stupid disease. Stop putting things on hold...and Just do it! For you and your famiily deserve better and more than that even during this tough times. Just do it!

God will take care of the rest.

Last night, on FB a good friend of mine from the Muscular dystrophy community told us that her son, Cody may not make it through the night. I wept. Another child again robbed from this stupid disease. Another innocent life robbed from us...a victim of duchenne muscular dystrophy. Like hundreds more out there is part of a statictics of a disease that was not cured fast enough to save a life. I hate this disease. Its time we End Duchenne. It's time we stop putting it on hold...its time we SAVE OUR CHILDREN'S LIVES! It might mean we have to work harder and longer hours. But let us just do it!

Saturday, November 7, 2009

Just Do it!!

I had wondered for a while to what happened to my "joy" of blogging. My biggest height of the day was blogging. Suddenly, it no longer became priority to me. Its like my motivation or interest got buried in other things...& frankly I think it sux big time. I miss it...I think. the fact I only blogged twice last month shows I reall suck now! (LOL)

I miss my blogging friends. I miss doing the different activities every day. I miss reading other blogs and commenting on them. I miss what blogging is all about. So! What am I going to do about it and just stop "bitching" about it. Why not just get back into the grove and do it and stop talking about it. Just do it. come on...just do it. you know you like it. you know you want to do it. NO MORE excuses. Just do it!

Ok...so here I am. I'm surviving,as usual. Tim is doing ok. Enjoying his nightly computer games. I take my quick naps and do what I can...knowing that I will be in much pain if I keep using my right arm...I tried not to type with my right hand cuz it such an habit, right?! But if I force myself to use it and not baby it then maybe I can accomplish more things. It only makes sense. Only then the pain becomes intollerable. Frankly...I 'm tired of it. So give me all the pain drugs, the creams, the tens unit, whatever to help ease the pain.

I'm in like a 1/2 cast. Yeah I know that sound stupid. They cast my arm then cut like 3/4's of it out and created like a splint from this cast. Very stupid. But its their creation. Frankly, it is NOT working. They tried to readjust it last week by adding this "padding" to it. Another new stupid look. So I don't see the doc until the 23rd and it then (ok I tried way before this but they kept referring back to the PT instead of the doctor) I see the doctor. He'll probably do the MRI since it is NOT healing like it should. They should had left the full cast on but nooooooo! they rather I just suffer more. Poor Tim even he is suffering as the result of it. I can't blame the boy. Really. When I lift him, I 'm in a lot of pain. I can't put my arm on a hard surface due to the extreme pain. But I figured God must be teaching me something...

...like don't beat up on yourself when things get really bad. Hey, the door was in my way when I was trying to go in my room to cry it off. Its alot of fustration. It's alot of anger. It's alot of other shit combined. A lot of people just don't get it. A lot of people j u s t d o n ' t g e t i t! Know where I'm going here? (LOL)

So today I got the 3 rd set of proofs for the cookbook. And I was amazed how thick this cookbook is going to be, but how beautiful it turned out. Better than I expect it. Much better. Now I wish I can add music to it. I would like to see the cookbook on a CD. Now I bet a lot of people would purchase that. At least postage would be cheaper and so would the shipping material. I have to find a way to see how to put the cookbook on PDF and on to a CD. When there is a will, there is a way. Right?!

So my landlord and I came up with some fun stragies to help sell the cookbook. I told her about my friend, Robin, who is one of my Gainesville Mom's, who takes photographs the best pictures. Beautifully done. I think I'm one of her biggest fans. Anyhow, with Robin's permission, we are setting Robin up one weekend to do Potrait day here at the Villa's. December 5! In time for Christmas. And I get to sell my cookbooks at that time too. So we are going to create a flyer and pass it out in this community and around and see what we can do to make money that day.

If you have not seen some of her work, go by her website: Everyday Moments.
and over at new site: Artfire. She also has a Facebook fan page ...check it out!

So come on over and get your family potrait and take some fun & unique pictures and share with family and friends!

Just do it...& Say "cheese" & Smile!!! Snap! snap! flash -flash!

Ok...as much as I hate to, I do need to stop talking (or better yet, typing) and maybe try to go back to sleep or watch my netflix movie. Anyone wanna watch a movie with me. I got popcorn!

Safe hugz,
dee

Wednesday, November 4, 2009

Delightful Vegetarian Cookbook


Pre-Order today and get a 25% discount! Enjoy this new delightful Vegetarian cookbook with your family and friends and enjoy the delicious recipes.
Thank you for supporting SHA!!

Thursday, October 29, 2009

It's just another day in Sunny Florida

Wow!!! where have I been in my blogging. what use to be an everyday now suddenly is here n' there posting. That is not really good. I've been slacking.

I have been busy with so different projects, I can use that as an excuse (or a good reason!), but I won't. Between the new Website and now working on a new cookbook for Parent Project Musuclar Dystrophy. I still need to present a proposal to them. plus trying to work on the cookbook for the new website on domestic violence.

This last weekend, I went to the butterfly festival and supported a friend who has the most beautiful photography art work. I was like this is way beyond art. Anyone can be a "photographer" but you have to have good creative art style to show forth your photography. See the art in it. (I hope that makes sense). She has so many that I would love to see printed on canvass, enlarged and over my sofa in my living room. Here is her website. Check it out and you will see what I mean about art in photography. If I had 10 thumbs to put up I would, so I would go ahead and give it 2 thumbs up.

www.artfire.com/users/everydaymoments

Then I spent some of the afternoon at the Gainesville Mom's Pumpkin patch fall party. I was a bit hesitant going because I don't have a toddler (anymore)...and sometimes I don't feel comfortable being there not because of the ladies/mom's but because I feel so childless. But I had a great time and found out that a mom of a mom comes here to read my blogs alot. I enjoyed so much talking to her and wished we had more time!! She was so sweet and appreciated her support.

On Sunday, despite the pain in my arm, I went back to the butterfly festival. sorry, but the place was nice and the company of her Robin (the photographer) and her sister was also such a joyous thing. I laughed due to their love and craving for the cotton candy. But they are wonderful and sweet sisters that truely support each other's activities.

Monday I finally made it to the Orthopedic. A Cat scan or MRI will be scheduled after 3 weeks in a cast. He thinks that there are stress fractures within the bone that can't be seen by an xray, so he is trying one thing first before doing something else.

Well on Monday, Tim and I discovered that officially his cell phone from t-mobile is literally broken. although he can call me I can't hear him but he can hear me. Its' an issue since we need our communications line open. So after a much struggle, we decided to put him under my plan via Verizon and so we went to order one online. I had to make sure it was a phone with a speaker phone and text. But most important, music!! LOL yes, that has to be on there.

But then on Monday, I discoverd that they (the idiots) mailed it to my old address in Sebring. A place I have not lived in 3 years and what I don't get, how they got that address. Because when we moved to Gainesville, we were still with Sprint Wireless. and didnt switch it until 3 months afer the move. So how did they even get my old home address. I was not a happy lady. So after a lot of phone calls, we tracked it down and re-route it. So now that makes it 1 day later. So today, it better show up. I still have a word with them cuz they advertised next day delivery, not 2nd day delivery and now this is really a 3 day delivery since they screwed up big time. Let's see what happens.

I like to thank the few friends who reached out and helped Tim and I with our electric bill. There are Angels amongst us. And when I mentioned about paying them back, their response was to pay it forward to a worthy cause. And that I will do. Thank you!

Here's a funny (but jerky thing) that happened. Tim emailed his dad asking to help pay for his college loan and his dad's response was...."what are they going to do, take you to court?" and my response is "Yes!!" if you don't pay and it goes to collections that will happen. Fortunately, my son is smart enough to say..." A loan is a loan, it has to be paid back no matter what" You see, my son is smart and knows how to use common sense! LOL That is the boy that I raised!! Proud of him. It just cracks me up how some adults can be "immature" and irresponsible. So it does not matter how many degrees you have, it doesn't make you a smart person. Right?!

OHHHHHH I have to tell you something that is sooooooo funny. OMG!! this is true that happeend this week and of course, in our house. the other day while I sat here and reading my Facebook comments, my cat, Baby was sleeping on the sofa...ok?! Well suddenly we heard this loud scratching sound from the bathroom . She looked at me and I looked at her and I asked her (like an idiot) "did you hear that? "

It didn't happen again.

But then while helping Timothy suddenly we heard what sound like a cat fight. You know that loud vicious sound when two cats are at it? Well the only problem is that there was no other cat in the house (at least we thought) and Baby was still sleeping on the sofa. So where the hell that sound come from? I looked all around the house. All around, under the beds, in the closets, in the dryer, in the other bathroom, etc..etc...etc... where did it come from? Well, we didn't hear it again for the rest of the day ...until the next day.

I came home and found that my cat had gone crazy...bizirk. I mean I already think my cat has schizo...now she has lost it suddenly. I found my living room in a disaster. My computer half way off the table and stuff all over the living room. Like the house was attacked. She has never done this before.

Then it happened again-that cat vicious sound. Only now I witnessed it.

Ready to hear this? make sure you are not eating or drinking anything, don't want you to choke from laughing.

It came from my computer. apparently someone or more than 1 has this sound effect as they come and go on AIM. LOL...apparently Baby got tired of it and try to attack my computer!

I have been animal sitting this week. A dog (nutter) and two cats. it has been fun.

Tim has not been well the last few days. I 'm afraid I might have to take him in. I will see how he does this morning. It worries me that how unpredictable he can be.

So....I need to go walk Nutter and see if I can try to catch some sleep. Catch ya all later!

Sunday, October 11, 2009

October brings Awareness for MD & Domestic Violence

So October is here! For most who live up north, they are dealing with the beautiful fall weather and the changing of leaves colors. From green to a magnificent of the golden sunrise. A splash of yellow, highlight of orange, & a shiny red glowing. All will eventually turn brown and the wind will pick it up to a new spot to wither in the winter months.

Well here in Florida, we are enjoying alot of sun and the sun still smothering us with the 80's-90's weather along with the humidity. Thank God for the AC!!

So the good news is that the SHA cookbook is officially off to the publisher. But I have started 2 new cookbook fundraising-they are in the works. Yes. You would think I was the "Cookbook queen"...lol. Nope not even near it. But these are great ways to raise funds for worth causes. right now we are only collecting recipes. Soon we will begin the process to find sponsors.

As part of a fundraising to raise more Awareness and educational support groups, we invite our friends and family to come on over and participate with a team spirit!

I participate with PPMD because I totally support this organization and their endless efforts to work with NIH, CDC and Congress to find a Cure for Duchenne Muscular dystrophy (which is what Tim is diagnosed with).

If you would like to contribute unlimited recipes to a cookbook for either one or both:

Parent Project Muscular Dystrophy www.parentprojectmd.org


I also participate with Aikido Meadows, a new Community for women who has been victims with Domestic Violence, and the goals to provide more peaceful and educational peer support groups.

Aikido Meadows- A Community of Women for women (for Domestic Violence)www.aikidomeadows.org
October is Domestic Violence month, so please help support this cause by at least contributing your recipes.

Thank you so much for your support!

The Stonecave Homecoming Association, Inc. cookbook (Vegetarian/Vegan) "From Heart to Home" will be available by December 1 (possible sooner). Please visit our website at: www.stonecavesdaacademy.org for more information in the following month.


Other than that....I have been suffering the depression far more then expected. I have to find something to do to help me stay out of the rut. Just need more support. So last week, when I was down and out, I did something totally stupid and currently wearing a temporary cast for my right arm. In pain, but bearable to keep my mind busy. Thank God for the drugs. It has been hard to care for Tim, but due to lack of support, I deal with it and unfortunately he suffers from it too. So I'm gonna watch a movie and then get Tim up ...or the other way around.

Hope everyone is doing great!

Safe hugz! Dee