Thursday, October 13, 2011

Campaigning to Save Lives

God is testing my patience here...my original post got deleted when asked to publish it. LOL...so here I go again with this old fart brain! :) 

As a parent, we do what we can to provide comfort for our children.  It is what we want for them  Its a fact that it is due to loving and caring for them.  Right? 

Do we really care for our children?  Do we deserve to? or better yet, does our children deserve it? 

So what if your child has a life threatening illness?  Needs as much as they can for not only comfort but the standard needs of life.  What if you were told that most likely YOUR child may die by a certain age?  Tell me, will you let that happen, or will you fight for their lives?   Will you let the disease win or will your child's life win? 

Oh I know that trust in God, have faith. Trust me, I do trust in Him.  And I pray everyday too!  But often God tells you that it is your turn to do something.  And with that, He richly blesses you.   Yes? Do you believe in this too? 

As a parent I do what I can to fight for Timothy. I do advocate alot for him. Dealing with government agencies, medical, educational...so much. Simply because he deserves it...& it is his rights too.  But in most cases, the goverment/medical agencies can not help.  There is no funding for it.  So that means I have to "work" for it...find other resources to help make it work...for Timothy. 


But sadly most of his family does not help...or even visit him.  Some have, but not all.  It is sad that I have found most of them are still running from him.  I laugh when they use me as their excuse...but really?  You gonna let your loveone die or go without because you may not like another person? Hello people...its NOT me your fighting for, its Timothy!!  Not even his father fights for him. That is just sad.  How can you not want to fight for your child's life? how can you not want a relationship with them?   STOP using me as an excuse to connect with Tim.

Timothy does not bite. Like you, he has emotion feelings.  He has decent conversations, he likes to hear a good joke and likes to tell a good joke.  He is intelligent, smart, whitty, funny. And when he could he loved to draw, write and he was a good poem writer.  He has done no harm to anyone else...but yet, many run from him...not wanting to be there for him or help him when he needs it.  Why? What are they afraid of?

Since my stroke, my physical limitations has made it difficult to do that one -on-one care for Tim like I use to do.  I no longer can lift him.  My balance is off and I don't have the ability anymore to push a 400lb power wheel chair onto a portable alumnum ramp into the van.  I can't lift him from his his wheelchair to the van seat or even onto his bed.   So there is a great need for medical equipment.

Tim does have a SPECIAL NEEDS TRUST ACCOUNT. Funds that go in there helps pays for his medical supplies, utilites and other needs.  IF there is enough funding, equipment he will be needing.   He is legally allowed to have this trust account where it will not affect his SSI or Medicaid. 

We have started a Campaign 400 fundraising.  We are hoping (and praying) that his 400 family and friends (and their friends) will be willing to contribue a minimum of $25 to his SPECIAL NEEDS TRUST ACCOUNT so that he can buy these medical equipments. 

Will you join us on this adventure as we campaign to help Timothy.  If you would like to explore about this adventure, please stop by his website at:  www.muscles4Timothy.org  and make a contribution. 

We thank you for your support.

1 comment:

  1. Hi, Nice post thanks for sharing. Would you please consider adding a link to my website on your page. Please email me back.

    Thanks!

    Randy
    randydavis387@gmail.com

    ReplyDelete

A mom shares her journey through the lessons of life along with her spiritual journey- as a single parent and with a muscular dystrophy son.