There isn’t a day that goes by when thoughts of you don’t enter my mind. I write lyrics and tunes in literary melodies, but no words could describe the gratitude I have for you, your unconditional cares and affection. It moves me with heartache every time I think of your lifelong sacrifices, but in you is where my sanctuary lies, knowing that I’m loved, always.
Between the hardships and despair, the smiles and laughter still linger. They continue seeping through, like the radiance of sunlight; its warmth from within. In a walk that was never mine, you’ve taken my hand and challenges with it, making them ours without hesitation.
Through your enduring spirit of strength and courage, I’ve learned that sometimes, we have to stop crying and live. Despite physical limitations, you refuse to let me feel sorry for myself and have the luxury of self-pity. Instead, you encourage me with expectations that include neither condescension nor partiality. With only dignity, grace, and a tremendous amount of gentleness and patience, you’ve given me a newfound respect for women that will stay with me forever.
Although I’m one to shatter dreams when you lay eyes upon my frail abode, I understand your fear of the future to come. This is reality, and as I fall apart to the notions of breaking your heart, I’ll stand tall, even while the world crumbles in my sight, for you’ve taught me well. I live for myself and am not afraid, because hope remains with me.
And I’m sorry I can’t relieve your burdens, for not being able to prove my love. I’m sorry for a lot of things. I hope you know that words for me often speak louder than actions. I might never be able to reach out and hug you, but if I could, I would… do anything for you. You’ve given your life to me and all of mine is yours.
But this isn’t about apologies. There’s nothing to be ashamed of when we’re in this journey together. No obstacle has existed in vain. It isn’t about thank yous either when you’ve asked none from me in return. I only hope that I’ve become the man you envisioned me to be, both in my heart and soul.
Dear Duchenne Moms, I nevertheless thank you for loving me throughout the years of my life. It’s nearly impossible for another to love me, but yours is my inspiration to understand that if our roles were reversed, I’d love and take care of her, just as you did me. Perhaps in this, you may remember that hope rests upon my foundation in you, and because of you, I know what love really means.
Remember me, for who I am, for you’re my mother, and I’m your son. I always will be.
With hope,
Your Duchenne Son
Written by Ricky Tsang
With tears streaming down my face, you are a constant reminder that there IS hope, you are a constant motivation to keep fighting this fight for you and all of our sons and daughters even when we feel like we've been kicked in the gut. You, my friend, are an inspiration to us all and any mom (or dad) in any walk of life would be proud to call you their son. Thank you from the heart!
